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Rett Syndrome News

News about Rett syndrome

Jan 31, 2011

Rett Syndrome Awareness

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Jan 10, 2011

Special Successes over Autism: Autism-Rett Syndrome Connection

Special Successes over Autism: Autism-Rett Syndrome Connection: "This is a continuation of my previous post: Understanding Autism-“The” Causes. In the last paragraph, I mentioned that the types of r..."

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Jan 7, 2011

New Rett Video Channel

A new video channel on YouTube by Rett girl

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Rett Syndrome Blogs

Rett Syndrome Research Trust

Hope! - by Beth Johnsson Someone once told me that hope is what distinguishes humans from every other species; our ability to look to a potential future rather tha...
11 hours ago
Amy

A failure of narrative - Today I thought I'd do a nice uplifting little post about Amy's progress with the MOVE programme. She's sitting better, with less support, and her school p...
11 hours ago
Rett Girl Blog

Go Gluten Free - Pamper Your Rett Girl's Gut - Many of our Rett Girls have GI issues or "tummy trouble" as we like to call it. Rett Syndrome is a neurological disorder, and it has long been studied that ...
1 day ago
The MacDonald Family

Healing Her Bones. Rett Syndrome and Osteoporosis - So ever since we got the diagnosis of Rett Syndrome 7 years ago I have been obsessed concerned with Annie's bones. I knew a sweet girl when I was going t...
2 weeks ago
Rett syndrome Awareness

Neuren Pursues New Drug for RTT - Pursuing the first Investigational New Drug (IND) for Rett syndrome: Neuren Pharmaceuticals announces a program to the FDA about a proposed Rett syndrom...
2 months ago
Team Abby

Let's Talk! - With Rett syndrome, communication is tricky. I know that most girls Abby's age are talking or texting for much of the day. She's a teenager now and teenage...
2 months ago
Riley Grace and Family

Disney Princess Half Marathon 2013 - Last Sunday Mitch and I ran the Disney Princess Half Marathon with Team Girl Power 2 Cure! We arrived late Thursday night (or rather early Friday morning...
2 months ago
Inspired By Love

Remembering Karly’s Life - October is Rett Syndrome Awarenss month. As Karly’s mom, I know how much she struggled throughout her life and ultimately died as a result of the many co...
7 months ago
Brooklyn Ashleigh Butler

NEW BLOG ADDRESS - Hey Everybody...... I have combined the kiddos blogs - be sure to stop over to www.specialmommyx2.com and keep up with us there :) Love & Hugs, Kelly
1 year ago
International Rett Syndrome Foundation - Forum

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1 year ago
Caitlyn's Family

What have we been up to? - Wow! Where did the time go!!! The kids have both changed so much in the past few months! Here we are all hangin out after school one day. (it was pjday!) ...
1 year ago
Avery Catherine Akins

Avery and Riley - I don't recall exactly how Erin and I became friends on this Rett journey but I'm so glad we did. Avery and I are fortunate enough to see Erin and Riley (a...
2 years ago
Zowie Withers

Opulently I acquiesce in but I dream the list info... - Opulently I acquiesce in but I dream the list inform should secure more info then it has.
3 years ago
Karlie Grace

I love her sweet smile! - Valentine's Day 2009 Emmaleigh was filming and didn't want her voice recorded so this is just a shot of my sweet girl enjoying the ride with a little m...
4 years ago

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