9 hours ago
Rett Syndrome Blogs
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Surgery Date - Many of you remember me posting THIS picture of Brooklyn's hip. Well - surgery has been scheduled. We will be over in Chicago on April 3rd for the day doing...
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7th World Rett Syndrome Congress (June 22-26th, 2012) - About the World Rett Syndrome Congress The International Rett Syndrome Foundation invites you to participate in the 2012 World Rett Syndrome Congress, host...12 hours ago
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Thank you Rett Syndrome - Yes, you read that title correctly. As much as I want and wish and pray to not have Rett Syndrome in our lives I can't do anything to take it away. Toda...
2 days ago -
BioWorld Insight feature article on Rett Syndrome - A recent issue of BioWorld Insight, the weekly newsletter that provides behind-the-scenes analysis and commentary on the biotechnology industry, included a...5 days ago
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Why I blog - It's two years now since I started blogging as a way of reflecting on our lives with Amy and recording our experiences of living in a world that felt like ...1 week ago
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Valentines Day! - Have you been on the Rett Girl Facebook page lately? If so then you'll remember that just a couple weeks ago we won a $500 donation from the Valentine Aardv...
2 weeks ago -
A Letter to Myself - I have been taking time to relax this week because I have been sick. I feel better and I am eager to share something today. In times when I am quiet, I th...1 month ago
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boring BMI stuff - This is mostly for my information, so I can look back on here and see where we were at. I'm trying to be better about keeping track of how much we actually...1 month ago
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Thank You All! - We had another successful Run4Rett on October 15th! The weather was not picture perfect, but we brought our own sunshine! Abby with her grandpas To m...
4 months ago -
What have we been up to? - Wow! Where did the time go!!! The kids have both changed so much in the past few months! Here we are all hangin out after school one day. (it was pjday!) ...
7 months ago -
Avery and Riley - I don't recall exactly how Erin and I became friends on this Rett journey but I'm so glad we did. Avery and I are fortunate enough to see Erin and Riley (a...
11 months ago -
Opulently I acquiesce in but I dream the list info... - Opulently I acquiesce in but I dream the list inform should secure more info then it has.2 years ago
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I love her sweet smile! - Valentine's Day 2009 Emmaleigh was filming and didn't want her voice recorded so this is just a shot of my sweet girl enjoying the ride with a little m...2 years ago
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