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Jan 7, 2010

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Rett Syndrome Blogs

Brooklyn Ashleigh Butler

Garden of Hope for Rett Syndrome - Garden of Hope for Rett Syndrome from Girl Power 2 Cure on Vimeo. Hey Blog readers.....have you been wondering how YOU might be able to get involved with r...
10 hours ago
Amy

A new house. (And an old fish.) - So we finally did it. We managed to move house, nearly a year from the point when I said out loud that it was going to happen. The frustrating idiosyncraci...
3 days ago
Rett syndrome Awareness

7th World Rett Syndrome Congress (June 22-26th, 2012) - About the World Rett Syndrome Congress The International Rett Syndrome Foundation invites you to participate in the 2012 World Rett Syndrome Congress, host...
1 week ago
The MacDonald Family

Thank you Rett Syndrome - Yes, you read that title correctly. As much as I want and wish and pray to not have Rett Syndrome in our lives I can't do anything to take it away. Toda...
1 week ago
Rett Syndrome Research Trust

BioWorld Insight feature article on Rett Syndrome - A recent issue of BioWorld Insight, the weekly newsletter that provides behind-the-scenes analysis and commentary on the biotechnology industry, included a...
1 week ago
Rett Girl Blog

Tube Feeding Resources - Many girls with Rett Syndrome need to be tube fed either exclusively or as a supplement for various reasons including aspiration and failure to thrive. The ...
2 weeks ago
Inspired By Love

A Letter to Myself - I have been taking time to relax this week because I have been sick. I feel better and I am eager to share something today. In times when I am quiet, I th...
1 month ago
Riley Grace and Family

boring BMI stuff - This is mostly for my information, so I can look back on here and see where we were at. I'm trying to be better about keeping track of how much we actually...
1 month ago
International Rett Syndrome Foundation - Forum

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2 months ago
Team Abby

Thank You All! - We had another successful Run4Rett on October 15th! The weather was not picture perfect, but we brought our own sunshine! Abby with her grandpas To m...
4 months ago
Caitlyn's Family

What have we been up to? - Wow! Where did the time go!!! The kids have both changed so much in the past few months! Here we are all hangin out after school one day. (it was pjday!) ...
7 months ago
Avery Catherine Akins

Avery and Riley - I don't recall exactly how Erin and I became friends on this Rett journey but I'm so glad we did. Avery and I are fortunate enough to see Erin and Riley (a...
11 months ago
Zowie Withers

Opulently I acquiesce in but I dream the list info... - Opulently I acquiesce in but I dream the list inform should secure more info then it has.
2 years ago
Karlie Grace

I love her sweet smile! - Valentine's Day 2009 Emmaleigh was filming and didn't want her voice recorded so this is just a shot of my sweet girl enjoying the ride with a little m...
2 years ago

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Jan 7, 2010

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