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Rett Syndrome Blogs
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Shedding Some Light on Sunscreen - Summer is here! BIG QUESTION on our minds: How do we protect our girls from the sun without harming them in the process? There is actually a lot of controver...
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"Where's Amy?" - It was Abby's birthday on Friday and I messed up. I wanted her to have a great day. And instead I made her cry. I sent Amy away. That's how she saw it, any...3 days ago
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happenings - Once again I slacked off on the blog posting, so here's a big general update so I can maybe get back into it again! Mitch is ... still working (ha). He r...
1 week ago -
Success! - The Barnes and Nobel Fundraiser was a HUGE success and a TON of fun! What a fantastic night with a bunch of great kids! Annie's friend Rachel (beautiful ...
1 week ago -
I Love My Garden - I am the happiest person alive! I have had the most wonderful people do something that I could never have asked for or expected. Our neighbors who are such...1 week ago
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Pursuing the first Investigational New Drug (IND) for Rett syndrome: Neuren Pharmaceuticals announces a program to the FDA about a proposed Rett syndrome clinical trial - http://www.rettsyndrome.org/flash/Research-Flash_online_050912.html Source: International Rett Syndrome Foundation1 week ago
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Treating Synaptic Dysfunction - RETT SYNDROME RESEARCH TRUST WEBSITE Last month brought me to Houston, Texas to attend a fascinating meeting organized by Huda Zoghbi and Morgan Sheng and ...2 weeks ago
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NEW BLOG ADDRESS - Hey Everybody...... I have combined the kiddos blogs - be sure to stop over to www.specialmommyx2.com and keep up with us there :) Love & Hugs, Kelly2 months ago
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Thank You All! - We had another successful Run4Rett on October 15th! The weather was not picture perfect, but we brought our own sunshine! Abby with her grandpas To m...
7 months ago -
What have we been up to? - Wow! Where did the time go!!! The kids have both changed so much in the past few months! Here we are all hangin out after school one day. (it was pjday!) ...
10 months ago -
Avery and Riley - I don't recall exactly how Erin and I became friends on this Rett journey but I'm so glad we did. Avery and I are fortunate enough to see Erin and Riley (a...
1 year ago -
Opulently I acquiesce in but I dream the list info... - Opulently I acquiesce in but I dream the list inform should secure more info then it has.2 years ago
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I love her sweet smile! - Valentine's Day 2009 Emmaleigh was filming and didn't want her voice recorded so this is just a shot of my sweet girl enjoying the ride with a little m...3 years ago
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