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Jan 7, 2010

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Rett Syndrome Blogs

Rett syndrome Awareness

Understanding Breathing problems in Rett Syndrome - Breathing problems are a major challenge in patients with Rett syndrome (RS) and they are more apparent in day-time but irregular breathing issues can be ...
5 years ago
Amy

obat raja singa pada wanita - [image: Obat Gonore Manjur] *obat raja singa pada wanita* - Penyakit sipilis merupakan penyakit yang sangat mudah menular, akan tetapi penularan penyakit i...
6 years ago
Team Abby

Not Back to School - After 5 years of high school, Abby is finished school! We are relieved to be past much of the long, complex process of obtaining government funding for Abb...
6 years ago
Rett Girl Blog

Spotlight Series: Rett Boys! - We are so excited to continue to highlight an extremely important group of people in our Rett family, our Rett BOYS! Read on to hear Maja and her son Tobi...
6 years ago
Riley Grace and Family

Grandma's Marathon Recap - I realize I never write in this blog anymore, but I wanted a place to write a race report for the marathon I just ran so I could go back and look at it if ...
8 years ago
Rett Syndrome Research Trust

Deep Brain Stimulation – A Potential Therapeutic for Rett Syndrome? - A paper authored by Huda Zoghbi and Jianrong Tang at Baylor College of Medicine and published in Nature describes improvement in learning and memory paradi...
9 years ago
The MacDonald Family

Quest for a Cure 2013!!! - We're walking again to CURE Rett Syndrome!!! Come on out and join Annie's A-Team on Sunday, Oct. 6 , 10am at the beautiful Inglenook Park in Southfield...
11 years ago
Inspired By Love

Remembering Karly’s Life - October is Rett Syndrome Awarenss month. As Karly’s mom, I know how much she struggled throughout her life and ultimately died as a result of the many co...
12 years ago
Brooklyn Ashleigh Butler

NEW BLOG ADDRESS - Hey Everybody...... I have combined the kiddos blogs - be sure to stop over to www.specialmommyx2.com and keep up with us there :) Love & Hugs, Kelly
12 years ago
Caitlyn's Family

What have we been up to? - Wow! Where did the time go!!! The kids have both changed so much in the past few months! Here we are all hangin out after school one day. (it was pj day!)...
13 years ago
Avery Catherine Akins

Avery and Riley - I don't recall exactly how Erin and I became friends on this Rett journey but I'm so glad we did. Avery and I are fortunate enough to see Erin and Riley (a...
13 years ago
Zowie Withers

Oh looks like sooo much fun!! I love how beautifu... - Oh looks like sooo much fun!! I love how beautiful all the girls look. I pray for the day we can all celebrate our girls reversal too!! I love the sign mad...
15 years ago
Karlie Grace

I love her sweet smile! - Valentine's Day 2009 Emmaleigh was filming and didn't want her voice recorded so this is just a shot of my sweet girl enjoying the ride with a little m...
15 years ago
International Rett Syndrome Foundation - Forum

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Jan 7, 2010

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