A birthday blessing
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Do you know how sometime you come across a kid that you know is going to
make a difference in this word? You know....a young man that has so much
heart, so...
Why I blog
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It's two years now since I started blogging as a way of reflecting on our
lives with Amy and recording our experiences of living in a world that felt
like ...
Prof. Adrian Bird Gives Speech at London Event
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Professor Adrian Bird needs no introduction to anyone who follows Rett
Syndrome research. His list of accomplishments includes discovering the
MeCP2 protei...
Rett Syndrome Comes Back for More
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A couple weeks ago Rett Syndrome decided that it didn't have enough power
over our little Annie and came back for more in the form of seizures. Our
day wa...
Valentines Day!
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Have you been on the Rett Girl Facebook page lately? If so then you'll remember that just a couple weeks ago we won a $500 donation from the Valentine Aardv...
A Letter to Myself
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I have been taking time to relax this week because I have been sick. I feel
better and I am eager to share something today. In times when I am quiet,
I th...
boring BMI stuff
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This is mostly for my information, so I can look back on here and see where
we were at. I'm trying to be better about keeping track of how much we
actually...
Thank You All!
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We had another successful Run4Rett on October 15th! The weather was not picture perfect, but we brought our own sunshine!
Abby with her grandpas
To m...
What have we been up to?
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Wow! Where did the time go!!! The kids have both changed so much in the
past few months! Here we are all hangin out after school one day. (it was pjday!)
...
Avery and Riley
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I don't recall exactly how Erin and I became friends on this Rett journey
but I'm so glad we did. Avery and I are fortunate enough to see Erin and
Riley (a...
I love her sweet smile!
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Valentine's Day 2009
Emmaleigh was filming and didn't want her voice recorded so this is just a
shot of my sweet girl enjoying the ride with a little m...