Garden of Hope for Rett Syndrome
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Garden of Hope for Rett Syndrome from Girl Power 2 Cure on Vimeo.
Hey Blog readers.....have you been wondering how YOU might be able to get
involved with r...
A new house. (And an old fish.)
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So we finally did it. We managed to move house, nearly a year from the
point when I said out loud that it was going to happen. The frustrating
idiosyncraci...
Thank you Rett Syndrome
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Yes, you read that title correctly. As much as I want and wish and pray to
not have Rett Syndrome in our lives I can't do anything to take it away.
Toda...
BioWorld Insight feature article on Rett Syndrome
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A recent issue of BioWorld Insight, the weekly newsletter that
provides behind-the-scenes analysis and commentary on the biotechnology
industry, included a...
Tube Feeding Resources
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Many girls with Rett Syndrome need to be tube fed either exclusively or as a supplement for various reasons including aspiration and failure to thrive. The ...
A Letter to Myself
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I have been taking time to relax this week because I have been sick. I feel
better and I am eager to share something today. In times when I am quiet,
I th...
boring BMI stuff
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This is mostly for my information, so I can look back on here and see where
we were at. I'm trying to be better about keeping track of how much we
actually...
Thank You All!
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We had another successful Run4Rett on October 15th! The weather was not picture perfect, but we brought our own sunshine!
Abby with her grandpas
To m...
What have we been up to?
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Wow! Where did the time go!!! The kids have both changed so much in the
past few months! Here we are all hangin out after school one day. (it was pjday!)
...
Avery and Riley
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I don't recall exactly how Erin and I became friends on this Rett journey
but I'm so glad we did. Avery and I are fortunate enough to see Erin and
Riley (a...
I love her sweet smile!
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Valentine's Day 2009
Emmaleigh was filming and didn't want her voice recorded so this is just a
shot of my sweet girl enjoying the ride with a little m...
