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Syndrome daughter
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4 years ago
Rett Syndrome Blogs
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2019 Registration and Abby Update - This year's Run4Rett will be the 15th time Team Abby has rallied together to raise funds and awareness for the Ontario Rett Syndrome Association! Although ...
4 years ago -
cara mengobati penyakit herpes agar tidak kambuh lagi - cara mengobati penyakit herpes agar tidak kambuh lagi - banyak para penderita penyakit herpes menginginkan kesembuhan yang cepat tanpa memikirkan apakah pe...
5 years ago -
Spotlight Series: Rett Boys! - We are so excited to continue to highlight an extremely important group of people in our Rett family, our Rett BOYS! Read on to hear Kate and her son Coli...
6 years ago -
Grandma's Marathon Recap - I realize I never write in this blog anymore, but I wanted a place to write a race report for the marathon I just ran so I could go back and look at it if ...
7 years ago -
Deep Brain Stimulation – A Potential Therapeutic for Rett Syndrome? - A paper authored by Huda Zoghbi and Jianrong Tang at Baylor College of Medicine and published in Nature describes improvement in learning and memory paradi...8 years ago
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Quest for a Cure 2013!!! - We're walking again to CURE Rett Syndrome!!! Come on out and join Annie's A-Team on Sunday, Oct. 6 , 10am at the beautiful Inglenook Park in Southfield...
10 years ago -
Remembering Karly’s Life - October is Rett Syndrome Awarenss month. As Karly’s mom, I know how much she struggled throughout her life and ultimately died as a result of the many co...11 years ago
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NEW BLOG ADDRESS - Hey Everybody...... I have combined the kiddos blogs - be sure to stop over to www.specialmommyx2.com and keep up with us there :) Love & Hugs, Kelly12 years ago
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What have we been up to? - Wow! Where did the time go!!! The kids have both changed so much in the past few months! Here we are all hangin out after school one day. (it was pj day!)...
12 years ago -
Avery and Riley - I don't recall exactly how Erin and I became friends on this Rett journey but I'm so glad we did. Avery and I are fortunate enough to see Erin and Riley (a...
13 years ago -
Oh looks like sooo much fun!! I love how beautifu... - Oh looks like sooo much fun!! I love how beautiful all the girls look. I pray for the day we can all celebrate our girls reversal too!! I love the sign mad...14 years ago
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I love her sweet smile! - Valentine's Day 2009 Emmaleigh was filming and didn't want her voice recorded so this is just a shot of my sweet girl enjoying the ride with a little m...15 years ago
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