A charity cycle is being organised by one of our members in collaboration with Rett UK and Rett NL to as raise money and awareness for Rett syndrome.
Rett syndrome is a rare neurological disorder affecting mainly females and very few males. People with Rett syndrome have profound and multiple physical and learning disabilities and are totally reliant on others for support throughout their lives.
The charity ride is scheduled to take place from 3rd - 6th September starting from UK and riding to Utrecht (Netherlands).
The ride is hoping to attract 100 cyclists (50 from each country) to take part in any of the 3 'legs'. 10 out of the 50 UK cyclists will get the opportunity to do the complete leg, whilst 40 will complete the UK leg only.
Looking set to create great media attention, book your places now for this fantastic charity cycle.
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Understanding Breathing problems in Rett Syndrome
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Breathing problems are a major challenge in patients with Rett syndrome
(RS) and they are more apparent in day-time but irregular breathing issues
can be ...
5 years ago
