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Rett Syndrome Blogs
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What’s next for brain-directed gene therapy after death in Neurogene trial
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Article by Reporter Calli Macmurray
https://www.thetransmitter.org/spectrum/whats-next-for-brain-directed-gene-therapy-after-death-in-neurogene-trial/
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5 weeks ago
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obat raja singa pada wanita
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[image: Obat Gonore Manjur]
*obat raja singa pada wanita* -
Penyakit sipilis merupakan penyakit yang sangat mudah menular, akan tetapi
penularan penyakit i...
6 years ago
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Not Back to School
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After 5 years of high school, Abby is finished school! We are relieved to
be past much of the long, complex process of obtaining government funding
for Abb...
6 years ago
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Spotlight Series: Rett Boys!
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We are so excited to continue to highlight an extremely important group of
people in our Rett family, our Rett BOYS! Read on to hear Maja and her son
Tobi...
7 years ago
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Grandma's Marathon Recap
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I realize I never write in this blog anymore, but I wanted a place to write
a race report for the marathon I just ran so I could go back and look at it
if ...
8 years ago
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Deep Brain Stimulation – A Potential Therapeutic for Rett Syndrome?
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A paper authored by Huda Zoghbi and Jianrong Tang at Baylor College of
Medicine and published in Nature describes improvement in learning and
memory paradi...
9 years ago
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Quest for a Cure 2013!!!
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We're walking again to CURE Rett Syndrome!!! Come on out and join Annie's
A-Team on Sunday, Oct. 6 , 10am at the beautiful Inglenook Park in
Southfield...
11 years ago
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Remembering Karly’s Life
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October is Rett Syndrome Awarenss month. As Karly’s mom, I know how much
she struggled throughout her life and ultimately died as a result of the
many co...
12 years ago
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NEW BLOG ADDRESS
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Hey Everybody......
I have combined the kiddos blogs - be sure to stop over to
www.specialmommyx2.com and keep up with us there :)
Love & Hugs,
Kelly
13 years ago
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What have we been up to?
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Wow! Where did the time go!!! The kids have both changed so much in the
past few months! Here we are all hangin out after school one day. (it was pj
day!)...
13 years ago
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Avery and Riley
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I don't recall exactly how Erin and I became friends on this Rett journey
but I'm so glad we did. Avery and I are fortunate enough to see Erin and
Riley (a...
14 years ago
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Oh looks like sooo much fun!! I love how beautifu...
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Oh looks like sooo much fun!! I love how beautiful all the girls look. I
pray for the day we can all celebrate our girls reversal too!! I love the
sign mad...
15 years ago
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I love her sweet smile!
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Valentine's Day 2009
Emmaleigh was filming and didn't want her voice recorded so this is just a
shot of my sweet girl enjoying the ride with a little m...
16 years ago
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